Treat your pet and raise money for HPS

If you’re a pet owner, you know that pet medications can easily be as expensive as medications for people. The HPS Network has partnered with USAPetMeds to offer drug discount cards for pet medications. For each purchase made using our policy numbers, the HPS Network gets 25 cents. That might not sound like a lot, but every little bit adds up. Get creative! If you need cards to share with other pet owners, contact the office. “I started passing them out at the dog park,” says Heather Kirkwood,...

Seward gives presentation about HPS at Grand Rounds

Dr. Samuel Seward Jr., a board member of the HPS Network, gave a grand rounds presentation in September at Mount Sinai West. The presentation was also telecast to an audience at Mount Sinai St. Lukes. He is the new Chair of the Department of Medicine at Mount Sinai West and Mount Sinai St. Lukes. He has also cared for patients with Hermansky-Pudlak Syndrome for decades. Donna Appell, President and CEO of the HPS Network, attended the event and formally introduced Dr. Seward to the audience....

HPS Network attends NOAH Conference

The HPS Network attended the national conference of the National Association for Albinism and Hypopigmentation (NOAH) in Pittsburgh in July. Donna Appell gave a presentation about Hermansky-Pudlak Syndrome, as well as helped out at a number of other sessions for parents. “It is important for everyone with albinism to know the facts about HPS, not just the people that have HPS,” says Appell, “It is the albinism community that is most likely to encounter people with HPS. They are in the best...

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