Mothers with children that have Hermansky-Pudlak Syndrome will be able to network with each other and learn how to handle the common issues that come up raising a child with HPS at the 24th Annual HPS Network Conference, to be held March 10 – 12, at the Long Island...
Kids attending Kids Camp at the HPS Conference, to be held at the Long Island Marriott in Uniondale, NY March 10 – 12 will have a plethora of fun activities to keep them busy while their parents attend conference sessions. The HPS Kids Camp includes children...
A number of researchers working on the gastrointestinal issues of Hermansky-Pudlak Syndrome will join us at this year’s HPS Conference to discuss current and planned research projects. If approval is secured in time, some samples may be collected at the...
Dr. Christian Mueller, Associate Professor in the Department of Pediatrics and in the Horae Gene Therapy Center at the University of Massachusetts Medical School will give a presentation on the basics of gene therapy at the 24th Annual HPS Network Conference, March 12...
Dr. Samuel Seward, board member of the HPS Network the Site Chair, Department of Medicine, at Mount Sinai St. Luke’s and West Hospitals, will present an overview of the basic standard of care for people affected by Hermansky-Pudlak Syndrome at the 24th Annual HPS...
