Kids write about rare to raise money for the HPS Network

Becky Nieves and Sandra Ocasio, both mothers of someone with HPS, are organizing a fundraising project and they’d like your child’s help. They are creating a 15-page book, written and illustrated by kids with HPS, their siblings and the children of adults with HPS, about being rare. The books will then be sold as a fundraiser. They already have eight submissions, but would love to have more! If you and your child 12 or under would like to participate here is what you need to do: Ask your child...

Klein hosts fundraiser at Bertucci’s

Friends and supporters of Amber Klein ate for the cure in May at Bertucci’s Italian Restaurant in Newark, DE. Bertucci’s is particularly known for its brick oven pizza. “We were really lucky that the restaurant, especially one of the waitresses, was so nice to us,” says Amber Klein, “It really helped make the event a success.” Bertucci’s has locations in different parts of the country and all have a program to help non-profits raise money. Those interested in hosting a similar fundraiser need...