Donna Appell, R.N.

donna_appellDonna Appell is the Founder and President of the Hermansky-Pudlak Syndrome Network Inc. Prior to that Ms Appell graduated Magna Cum Laude with a BSN and was employed by St. Francis Hospital for 22 years as an RN in the Open Heart Intensive Care Unit. In June 2002, Mrs. Appell was appointed to the American Thoracic Society’s (ATS) Public Advisory Roundtable. As such she received The Public Service Award, in recognition of service in public health, in the area of lung-related health issues, in May 2003. In May 2007, she was appointed to Chairperson of the Public Advisory Roundtable of the ATS at the International Conference in San Francisco. Ms. Appell is on the Board of Directors and is the Education Coordinator for Reach Out for Youth with Ileitis and Colitis, and is a Director and Scientific Advisor for the National Organization of Albinism and Hypopigmentation.

Additionally, she served five years on the Board of Directors of the Genetic Alliance, Washington, DC, and is a member of the Coalition of Genetic Fairness whose successful mission was lobbying to support the passage of the Genetic Information Nondiscrimination Act.

In October, 2005 she was awarded the VERITAS Medal for Outstanding Alumni from Molloy College and in March, 2006 she was given a Citation for Women of Distinction in Health Service from Supervisor Venditto, Town of Oyster Bay, New York. Appell also served on the planning committee for National Heart, Lung and Blood Institute’s Public Interest Organization Meetings for 2006-07.

Presently, she is serving on the Council of Public Representatives for the Director of the National Institutes of Health. The council advises the NIH Director (currently Dr. Francis Collins) on issues related to public input and participation, NIH activates, the NIH research priority setting process and public relations and outreach programs. She is also serving on the New York – Mid-Atlantic Consortium for Genetic and Newborn Screening Services in a workgroup managing the issues of transitioning young people with chronic illnesses and disabilities from pediatric care to adult medicine.

She is a co-founder and board member of Project DOCC – Delivery of Chronic Care. This medical education curriculum enables healthcare professionals to walk in the footsteps of individuals with chronic illness and their families and has been featured in Parade Magazine and the New York Times. Project DOCC was covered in “Women’s Day SALUTES” in Women’s Day Magazine, and in the section of “Women Who Make a Difference” in Family Circle Magazine. Through her role in Project DOCC, she was presented with the Parenting Leaders Award, from Parenting Magazine and The Parent Award from North Shore Child and Family Guidance Center in 2002.

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