HPS Network collaborates with the Rare Lung Disease Consortium to accelerate research

The Hermansky-Pudlak Syndrome Network (HPS Network) has formed a collaboration with the Rare Lung Disease Research Consortium to accelerate research on Hermansky-Pudlak Syndrome. “We are very excited about this project that will enhance our research efforts on the lung disease of HPS,” says HPS Network President and Founder Donna Appell, “It will offer our community opportunities to participate in research that will help prepare us for future treatment trials and enable the engagement of more...

So you think you’d never use a cane – Presentation about orientation and mobility

Some people with visual impairments assume they would never benefit from using a white cane, or from orientation and mobility instruction, because they do have a fair amount of functional vision. Mike Desposati, an Orientation and Mobility Instructor from Helen Keller Services for the Blind, will give an introductory session on various uses for a white cane or orientation and mobility instruction, Saturday afternoon, March 11, at the 24th Annual HPS Network Conference. Sometimes white canes...

24th Annual HPS Conference

24th Annual HPS Conference About this Event When: Friday, March 10, 2017 – 4:00pm – Sunday, March 12, 2017 – 4:00pm Where: Long Island Marriott Hotel & Conference Center 101 James Doolittle Boulevard Uniondale, New York 11553 USA Phone: 1-516-794-3800 Fax: 1-516-794-5936 Sales: 1-516-794-3800 ext. 6800 Toll-Free: 1-800-832-6255 Come join us for the 24th Annual HPS Network Conference in New York. Sessions will be chock-full of useful information for all ages designed to...

Contact Us


Phone: 1 (800) 789-9HPS
Email: info@hpsnetwork.org

Disclaimer


This Website is intended to provide information. It is not intended to, nor does it, constitute medical or other advice. Readers are warned not to take any action with regard or otherwise, based on the information on this website without first consulting a physician.