Hermanksy-Pudlak Syndrome Education Day
About:
The American Thoracic Society (ATS), the Hermansky-Pudlak Syndrome Network (HPS Network) and the San Juan City Hospital (Puerto Rico) presents a free one day education seminar on Hermansky-Pudlak Syndrome. This event is being held in conjunction with the “Rare Lung Diseases Week at the ATS” program-an educational activity designed to foster interaction between clinicans, patients, and patient advocates on lung and airway disorders.
Where:
Sheraton Puerto Rico Hotel
200 Convention Blvd, San Juan, PR 0090
When:
Saturday April 21, 9:00 am to 3:00 pm AST
Who: Open and free to all individuals with HPS, their family members and health care providers. It is also open to the interested general public. A light breakfast and complimentary lunch wil be provided.
RSVP:
If you would like to attend this event please RSVP by email to Ms. Donna Appell, RN of the HPS Network at dappell@hpsnetwork.org no later than Monday April 16, 2018. Space is limited so please respond early. 1-855-754-1040 for Spanish.
Program:
9:00 to 10:00 am. Registration and light breakfast.
10:00 to 10:30 am. Welcome from the American Thoracic Society (Mr. Courtney L. White)
Welcome from the HPS Network (Donna Appell, RN)
Welcome from the San Juan City Hospital (Maria Christina Betancourt, MD)
10:30 to 11:15 am. Hermanksy-Pudlak Syndrome Fibrosis (Bernadette Gochuico, MD)
11:15 to 12:00 pm. Lung Transplantation (Fernando Torres, MD)
12:00-1:00 pm. LUNCH
1:00-1:45 pm. Puerto Rico Pulmonary Fibrosis Clinic (Jesse Roman, MD)
1:45-2:30 pm. Living with HPS-Pulmonary Fibrosis: Before and After Transplant (Nancy Lee)
2:30-3:00 pm. Q&A
We’d love to see you in person but if you are unable to join us in Puerto Rico,
please click here to sign up for our live webinar.