Hermanksy-Pudlak Syndrome Education Day

About:
The American Thoracic Society (ATS), the Hermansky-Pudlak Syndrome Network (HPS Network) and the San Juan City Hospital (Puerto Rico) presents a free one day education seminar on Hermansky-Pudlak Syndrome. This event is being held in conjunction with the “Rare Lung Diseases Week at the ATS” program-an educational activity designed to foster interaction between clinicans, patients, and patient advocates on lung and airway disorders.

Where:
Sheraton Puerto Rico Hotel
200 Convention Blvd, San Juan, PR 0090

When:
Saturday April 21, 9:00 am to 3:00 pm AST

Who: Open and free to all individuals with HPS, their family members and health care providers. It is also open to the interested general public. A light breakfast and complimentary lunch wil be provided.

RSVP:
If you would like to attend this event please RSVP by email to Ms. Donna Appell, RN of the HPS Network at dappell@hpsnetwork.org no later than Monday April 16, 2018. Space is limited so please respond early. 1-855-754-1040 for Spanish.

Program:
9:00 to 10:00 am. Registration and light breakfast.
10:00 to 10:30 am. Welcome from the American Thoracic Society (Mr. Courtney L. White)
Welcome from the HPS Network (Donna Appell, RN)
Welcome from the San Juan City Hospital (Maria Christina Betancourt, MD)
10:30 to 11:15 am. Hermanksy-Pudlak Syndrome Fibrosis (Bernadette Gochuico, MD)
11:15 to 12:00 pm. Lung Transplantation (Fernando Torres, MD)
12:00-1:00 pm. LUNCH
1:00-1:45 pm. Puerto Rico Pulmonary Fibrosis Clinic (Jesse Roman, MD)
1:45-2:30 pm. Living with HPS-Pulmonary Fibrosis: Before and After Transplant (Nancy Lee)
2:30-3:00 pm. Q&A

We’d love to see you in person but if you are unable to join us in Puerto Rico,
please click here to sign up for our live webinar.

Contact Us


Phone: 1 (800) 789-9HPS
Email: info@hpsnetwork.org

Disclaimer


This Website is intended to provide information. It is not intended to, nor does it, constitute medical or other advice. Readers are warned not to take any action with regard or otherwise, based on the information on this website without first consulting a physician.