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Registration forms are now available for the 2012 HPS Network Family Conference
Registration forms are now available for the 19th Annual HPS Network Family Conference in Uniondale, New York (March 16 – 18, 2012). The forms are currently being mailed to members who have up-to-date contact information in the Hermansky-Pudlak Syndrome patient registry. If you’d prefer to download the form, you can find it at: http://www.hpsnetwork.org/en/events/2012-03-16/19th-annual-hps-conference.
In other News
- Registration forms are now available for the 2012 HPS Network Family Conference
- English-speaking parent support call: Adaptive Technology Resources
- Hotel room block is open for the 19th Annual HPS Network Family Conference
- Appell performs at Glenn Cove High School
- Members of NWBAR attend special screening of RARE