April 20, 2009
Senator Lucy Arce Ferrer, a Senator-at-Large in the Senate in Puerto Rico, presented Donna Appell, President of the HPS Network with a resolution, passed by the Puerto Rican Senate, honoring the 16th Annual Conference of the HPS Network and thanking the Network for its advocacy on behalf of patients from Puerto Rico.
Sen. Arce was an honored guest at the Network and expressed her interest and willingness to help advocate for patients with Hermansky-Pudlak Syndrome. She attended the conference sessions and showed great interest in the work of the Network.
In Puerto Rico, the senator is well known for her work on health care policy.
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