Hermansky-Pudlak Syndrome Network Inc

Donna Appell and Dr. Samuel Seward presented at Lincoln Hospital Grand Rounds in the Bronx on Feb. 23rd as part of an outreach initiative in New York City. Dr. Seward presented the scientific information about Hermansky-Pudlak Syndrome, while Appell presented information about the HPS Network and the resources it has to offer those affected by HPS. About 40 physicians and residents attended the lecture.

The opportunity came about thanks to the groundwork laid by HPS Network member Brenda Lopez. Lopez made the initial contact with the hospital and acted as a liaison between the Network and the hospital’s public affairs office. Heather Kirkwood also attended the lecture and met with the public affairs office afterwards.

After the presentation, several physicians stayed to ask additional questions. The hospital public affairs office also expressed an interest in working with the HPS Network on neighborhood public health outreach projects in the future.