Hermansky-Pudlak Syndrome Network Inc

On Feb. 24th Brenda Lopez, Leticia Colonio and Heather Kirkwood spent an hour on the streets of the Bronx handing out chocolates and brochures about Hermansky-Pudlak Syndrome in English and Spanish. The trio focused on a neighborhood near Lincoln Hospital that has a large Puerto Rican population.

Brenda Lopez obtained permission from the manager of a neighborhood CVS Pharmacy to stand at the store’s entrance and pass out information.

It was the trio’s hope that the brochures might generate greater community awareness and eventually, through the grape vine, find their way into the hands of those that need the information most.