Hermansky-Pudlak Syndrome Network Inc

The HPS Network Puerto Rico appeared on the television show “En Cuerpo y Alma” hosted by Dr. Natalio Izquierdo Aug 12. HPS Network Puerto Rico President Ricardo Rangel and HPS Network Puerto Rico board member and administrative coordinator Yeidyly Vergne appeared first to speak about HPS as well as some of the issues those living with HPS must face. They also spoke about the upcoming HPS Puerto Rico Family Conference.

In subsequent segments of the show others from the HPS Network shared their wisdom and experiences including: Marilett Ortiz, Mervin Hernandez, German Acevedo, Ricardo Rangel (son of Ricardo and Ivette), Donna Appell and Ashley Appell.

At the end of the show, a group shot was taken of everyone including Ivette Vazquez, Hilda Cardona and Heather Kirkwood.