Donna Appell, President and CEO of the HPS Network, and Ashley Appell, an adult with HPS, were on hand for the new joint Fetal Medicine Program created between the Children’s Hospital of Philadelphia (CHOP) and Mount Sinai hospitals. The hospitals also have an alliance for pediatric cardiac and oncology services. Both medical institutions are also home to bowel research on Hermansky-Pudlak Syndrome. The ribbon cutting was held at its new facility at the Mount Sinai Annenberg Building.

The new program will provide mothers who have fetuses that may be at risk a “one-stop” experience for diagnostic evaluation and consultation. Multiple tests can be done during a one-day visit. Families can also meet with a team of experts from both Mount Sinai and CHOP to discuss diagnosis and potential treatments. Diagnostic testing will be done at Mount Sinai Hospital and images will be read by fetal imaging experts at CHOP.

Share this page Share on FacebookTweet about this on TwitterEmail this to someonePrint this page

Contact Us


Phone: 1 (800) 789-9HPS
Email: info@hpsnetwork.org

Disclaimer


This Website is intended to provide information. It is not intended to, nor does it, constitute medical or other advice. Readers are warned not to take any action with regard or otherwise, based on the information on this website without first consulting a physician.