The HPS Network has set up a Puerto Rican Relief Fund to help Puerto Rico, an island devastated by the ravages of Hurricanes Irma and Maria. The island is home to the largest population of families affected by Hermansky-Pudlak Syndrome, a genetic disorder that involves albinism, low vision and a bleeding disorder. Depending on the gene involved, it can also cause digestive disease and/or pulmonary fibrosis (a fatal scarring of the lungs).

The HPS Network has worked in Puerto Rico for many years and we have many, many good friends and family affected by Hurricanes Irma and Maria. Now, our loved ones on the island must cope with catastrophic damage. The island will need help for months to come. Please join us to raise funds to help in what will be a long process of rebuilding. Your donations are tax deductible. Our only overhead costs are the 2.2 percent the credit card processors charge. The Appell family will match, dollar for dollar, the first $1,500 of donations. To donate, visit www.hpsnetwork.org. Click on the red “donation” button on the opening page. If you donate using a debit or credit card, you’ll be able to put “Puerto Rican Relief Fund” in the field for instructions to the vendor. Or, you can send checks to: HPS Network, One South Road, Oyster Bay, NY 11771. Please put on the memo line “HPS Puerto Rican Relief Fund”.

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This Website is intended to provide information. It is not intended to, nor does it, constitute medical or other advice. Readers are warned not to take any action with regard or otherwise, based on the information on this website without first consulting a physician.