Oyster Bay, NY – The Hermansky-Pudlak Syndrome Network (HPS Network) donated $5,000 to the 2018 Federation of American Societies for  Experimental Biology (FASEB) Science Research Conference on “The Lung Epithelium in Health and Disease.” The FASEB conference will be held, July 29 – August 3, 2018 in Olean, NY.

 

“We are delighted to be able to support the work of this conference, and the researchers who will be attending,” said Donna Appell, Executive Director and Founder of the HPS Network, “Understanding the lung epithelium better will help not only patients with Hermansky-Pudlak Syndrome, but those with other lung diseases as well.”  Their work is vital to discoveries that will, hopefully, lead to better treatments, and someday cures, for all of us.”

 

The HPS Network is a 501c3 organization serving families affected by Hermansky-Pudlak Syndome or HPS. HPS is a type of albinism that involves not only low vision, but also a bleeding disorder. Depending on the gene involved, it can also cause digestive disease and pulmonary fibrosis. People with HPS types 1, 2, and 4 develop pulmonary fibrosis 100 percent of the time. The HPS Network connects families with diagnostic testing, provides education for both the patient and medical communities and supports research. Learn more at www.hpsnetwork.org

 

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