El-Chemaly to speak about lung transplantation at the 26th Annual HPS Network Conference

Dr. Souheil Y. El-Chemaly will give a presentation about lung transplantation at the 26th Annual HPS Network Conference, to be held March 8 – 10, 2019 at the Long Island Marriott in Uniondale, N.Y. Understanding the process of lung transplantation will help those with Hermansky-Pudlak Syndrome decide if this is the right option for them, as well as help them prepare for the process. Advanced planning can save time when time matters most.   Dr. El Chemaly is the Clinical Director of the...

Bailey to explain how people with albinism see at HPS Conference

Matt Bailey, a well-known and active member of the albinism community, will give a presentation to explain how people with albinism see at the 26th Annual HPS Network Conference. Bailey is an adult with albinism, however, does not have HPS. His presentation on how people with albinism see was well received at the National Organization for People with Albinism and Hypopigmentation (NOAH) Conference. Bailey is a marketing research analyst for the media industry. He served on NOAH’s Board of...