HPS Network partners with NIH to create symptom scale tool

Twelve people with HPS or their direct family/caregivers are taking part in focus groups to help refine an HPS symptom scale tool. The tool is a collaboration of the National Institutes of Health and the HPS Network. It will help quantify which symptoms of HPS affect...

Giving Tuesday Now

HPS Network Responds to Urgent COVID19 Need with a gratitude campaign of online giving, Joining #GivingTuesdayNow in Global Day of Giving and Unity. Go Fund Me Donation Page for Giving Tuesday Now We hope that this message finds you all safe during these trying...

test2

Recall of nasal DDAVP EveryLife Foundation establishes RAREis scholarship fund New HPS gene...