Save the Date!

Aug 14, 2019 at 8:00 pm ET

We’ve come a long way. Instead of looking for researchers and hoping they will be interested in HPS, we have some of the world’s leading minds in gene therapy and stem cell research working on HPS. We have promising candidate drugs that will hopefully soon advance to clinical trials. Now, we need to fund the conference. The conference isn’t just informative or fun. It’s the place where our researchers come together to compare notes and find ways to work together. It’s where we, the people with HPS, often give samples for research. It’s the place where we inspire the people we need to help us. And, for many of us, it’s the one place where we know we are not alone living with HPS.

We have spent a LOT of our budget this year to take advantage of research opportunities that came along, thus we are very, very short of funds for the HPS Conference. This webinar will be a focus group to gather ideas about fundraising, to learn what the Network can do to help our community fundraise or to get some practical how-to advice if you’ve got a fundraiser in mind. The more brains the better. Join us and help us create solutions. Stay tuned for details about how to log in closer to the Webinar.