Rare Disease Workgroup Appointment

Oct 4, 2022

Ashley Appell has been appointed to New York’s Rare Disease Workgroup.

Ashley was selected to serve as a patient advocate. She will express patient concerns and goals to the workshop group. The group will then advise New York Assembly representatives regarding public policies that touch patients and families impacted by rare diseases. The group is also comprised of other stakeholders including caregivers and providers. Appell will serve through 2024.