Liliana Mangiafico, a long-time supporter of the HPS Network and those affected by Hermansky-Pudlak Syndrome, ran the Boston Run to Remember May 28th to raise funds and awareness for HPS. Mangiafico has run the same race several years for the HPS Network and has used her skills as an attorney to be a great resource for patients with HPS and concerns regarding social security disability. She learned about the HPS Network through a colleague at work, Carmen Camacho. We, as a community, are grateful for her support.

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