About the Network

Our Mission

The Hermansky-Pudlak Syndrome Network Inc. is a volunteer self help, not for profit support group for people and families dealing with Hermansky-Pudlak Syndrome (HPS) and related disorders such as Chediak Higashi Syndrome.

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Member Stories

Real life stories from people living with Hermansky-Pudlak Syndrome.

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Member Photos

Pictures of people with Hermansky-Pudlak Syndrome.

Our Member Photos

HPS Around the Web

Check out videos and commentary by people with HPS.

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