About the Network

  • Our Mission
  • The Hermansky-Pudlak Syndrome Network Inc. is a volunteer self help, not for profit support group for people and families dealing with Hermansky-Pudlak Syndrome (HPS) and related disorders.
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  • Board of Directors
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  • Scientific Advisory Board
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  • Annual Reports
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  • Member Photos
  • Pictures of people with Hermansky-Pudlak Syndrome.
    Our Member Photos

  • Member Stories
  • Real life stories from people living with Hermansky-Pudlak Syndrome.
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