Please Join Us!

Here are the details for the upcoming virtual events we have planned.  The link to each event is included in your monthly member email.  If you need more information, please don’t hesitate to contact us at events@hpsnetwork.org

Adults, come join us for fun conversation and a sharing of experiences about living with HPS. This month’s call will be on Tuesday, December 19th at 7pm ET.  If you prefer to have the conversation in Spanish, join us on Tuesday, December 12th at 7pm ET with a special guest; Maryluz Fuentes, MD, MSPH.  She will be talking about the different infections/viruses that we might be susceptible to (adults and parents are invited).

Adultos, únanse a nosotros para una conversación divertida y un intercambio de experiencias sobre cómo vivir con HPS. La llamada de este mes será el 19 de diciembre a las 7pm ET (8pm Puerto Rico).  Si prefiere tener la conversación en español, únase a nosotros el 12 de diciembre a las 7pm ET (8pm Puerto Rico). 

Parents, come join us for conversation and community.  The conversation is open to parents of all ages.  We will be conversing in English on December 11th at 12pm ET.  We will be conversing in Spanish on December 4th at 12pm ET (1pm Puerto Rico).

To better serve you, we have moved the parent calls during the day, as it seems a better time for more parents.  We will still schedule some calls at night if we have a special guest or speaker, but we will let you know ahead of time.

Padres, únanse a la conversación y la comunidad. Esta llamada está abierta a padres o encargados de personas con HPS.  Conversaremos en ingles el 11 de diciembre a las 12pm ET (1pm Puerto Rico).  Estaremos conversando en español, 4, de diciembre a las 12pm ET (1pm Puerto Rico).

Para brindarle un mejor servicio, hemos cambiado las llamadas a los padres durante el día.  Este horario parece ser mejor para así evitar conflicto con la hora de dormir y las noches escolares. Aún así programaremos algunas llamadas por la noche si tenemos un invitado o orador especial, pero te avisaremos con anticipación.

Join us, for a Town Hall meeting on Wednesday, November 29th at 8pm ET.  As always, Donna will be giving an update on the work the Network is doing.  It is also the perfect setting to bring all of your HPS questions and concerns. 

Tendremos una reunión abierta el 29 de noviembre a las 8pm ET (9pm Puerto Rico). Como siempre, Donna no informara sobre el trabajo que está haciendo la Red. También es el escenario perfecto para traer todas sus preguntas e inquietudes sobre HPS.  

Mothers, join us for these interactive workshops with Sheila Adamo, LCSW, CADC.

The workshops provide an opportunity for mothers of children with HPS to connect, learn and empower one another.  Participants will have an opportunity to process the many emotions that come along with having a child with HPS while continuing to build a community of supportive, wonderful mothers that will be part of your team.

Registration is required for these events.  Follow the links below to register today!