Hermansky-Pudlak Syndrome Network |

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HPS researchers Gather for Meeting of the Minds

The third annual Meeting of the Minds brought together 38 doctors and researchers working to solve the mysteries of Hermansky-Pudlak Syndrome, March 11th at the Long Island Marriott in Uniondale, NY. The meeting was held in conjunction with the 24th Annual HPS Network Conference.

HPS moms to gather for third annual Mothers’ Workshop at the HPS Network Conference

Mothers of children with HPS will gather for their third annual workshop Friday, March 8, 2019 at the 26th Annual HPS Network Conference. The HPS Network Conference will be held March 8 – 10, 2019 at the Long Island Marriott in Uniondale, NY. The Mother’s Workshop...

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Newsroom

American Council of the Blind has opened its 2019 college scholarship application process
Supporters escape to fund the cure
Dr. Samuel Seward to attend the 26th Annual HPS Network Conference
Kleins take part in Boscov’s Friends Helping Friends days
HPS Network donates funds to support pediatric HPS Clinic in Puerto Rico

Coming Up

Join the HPS Network at Outback Steakhouse to eat for the cure
HPS Multidisciplinary Clinic to be held in Mayaguez
HPS moms to gather for third annual Mothers’ Workshop at the HPS Network Conference
Eat for the Cure at Mama Gina’s in Valley Stream, NY
26th Annual HPS Network Conference to be held for families affected by HPS