Hermansky-Pudlak Syndrome Network |

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HPS researchers Gather for Meeting of the Minds

The third annual Meeting of the Minds brought together 38 doctors and researchers working to solve the mysteries of Hermansky-Pudlak Syndrome, March 11th at the Long Island Marriott in Uniondale, NY. The meeting was held in conjunction with the 24th Annual HPS Network Conference.

Bailey to explain how people with albinism see at HPS Conference

Matt Bailey, a well-known and active member of the albinism community, will give a presentation to explain how people with albinism see at the 26th Annual HPS Network Conference. Bailey is an adult with albinism, however, does not have HPS. His presentation on how...

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Newsroom

Puerto Rican Senate to hold hearing on Bill 1127
Michael J. McGowan Leadership Scholarship application open
El-Chemaly to speak about lung transplantation at the 26th Annual HPS Network Conference
Bailey to explain how people with albinism see at HPS Conference
Steve Shank to ride Donate Life Rose Parade float

Coming Up

Join the HPS Network at Outback Steakhouse to eat for the cure
HPS Multidisciplinary Clinic to be held in Mayaguez
HPS moms to gather for third annual Mothers’ Workshop at the HPS Network Conference
Eat for the Cure at Mama Gina’s in Valley Stream, NY
26th Annual HPS Network Conference to be held for families affected by HPS