Hermansky-Pudlak Syndrome Network |

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HPS researchers Gather for Meeting of the Minds

The third annual Meeting of the Minds brought together 38 doctors and researchers working to solve the mysteries of Hermansky-Pudlak Syndrome, March 11th at the Long Island Marriott in Uniondale, NY. The meeting was held in conjunction with the 24th Annual HPS Network Conference.

HPS Network offers wallet card with QR code

The HPS Network is offering a wallet-sized medical health alert card that has a QR code physicians or emergency personnel can scan to instantly be directed to information about HPS, treating bleeding and even some of the key standard-of-care medical papers they might...

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Newsroom

Flor Otero’s transplant story published in the Highlands News-Sun
HPS Network offers wallet card with QR code
Eat for the Cure at Mama Gina’s in Valley Stream, NY
26th Annual HPS Network Conference to be held for families affected by HPS
Update the HPS Network on new developments in your health history

Coming Up

Eat for the Cure at Mama Gina’s in Valley Stream, NY
26th Annual HPS Network Conference to be held for families affected by HPS
ATS Day in Puerto Rico
Hermansky-Pudlak Syndrome Education Day to be held in Puerto Rico
Families affected by Hermansky-Pudlak Syndrome to gather for 25th Annual Conference