Hermansky-Pudlak Syndrome Network |

Watch our video: “The Future of HPS”

HPS researchers Gather for Meeting of the Minds

The third annual Meeting of the Minds brought together 38 doctors and researchers working to solve the mysteries of Hermansky-Pudlak Syndrome, March 11th at the Long Island Marriott in Uniondale, NY. The meeting was held in conjunction with the 24th Annual HPS Network Conference.

Hermansky-Pudlak Syndrome Education Day to be held in Puerto Rico

The American Thoracic Society (ATS), the Hermansky-Pudlak Syndrome Network (HPS Network) and the San Juan City Hospital Puerto Rico will offer a free one-day educational seminar for patients affected by Hermansky-Pudlak Syndrome, their families and health care...

-- Read more ...

Newsroom

HPS Network joins other rare disease organizations in support of the RARE Act
New lung transplant program opens in New York
Sanofi Genzyme awards Hermansky-Pudlak Syndrome Network a Patient Advocacy Leadership Award
Hermansky-Pudlak Syndrome Education Day to be held in Puerto Rico
HPS Network adds 48 new people with Hermansky-Pudlak Syndrome to registry

Coming Up

ATS Day in Puerto Rico
Hermansky-Pudlak Syndrome Education Day to be held in Puerto Rico
Families affected by Hermansky-Pudlak Syndrome to gather for 25th Annual Conference
Kids with HPS to learn circus tricks
Stem cell expert to present on Science Sunday at the 25th Annual HPS Network Conference