Hermansky-Pudlak Syndrome Network |

Watch our video: “The Future of HPS”

HPS researchers Gather for Meeting of the Minds

The third annual Meeting of the Minds brought together 38 doctors and researchers working to solve the mysteries of Hermansky-Pudlak Syndrome, March 11th at the Long Island Marriott in Uniondale, NY. The meeting was held in conjunction with the 24th Annual HPS Network Conference.

HPS moms to gather for third annual Mothers’ Workshop at the HPS Network Conference

Mothers of children with HPS will gather for their third annual workshop Friday, March 8, 2019 at the 26th Annual HPS Network Conference. The HPS Network Conference will be held March 8 – 10, 2019 at the Long Island Marriott in Uniondale, NY. The Mother’s...

-- Read more ...

Newsroom

Steve Shank to ride Donate Life Rose Parade float
National Federation of the Blind Scholarship program open for applications
American Council of the Blind has opened its 2019 college scholarship application process
Supporters escape to fund the cure
Dr. Samuel Seward to attend the 26th Annual HPS Network Conference

Coming Up

Join the HPS Network at Outback Steakhouse to eat for the cure
HPS Multidisciplinary Clinic to be held in Mayaguez
HPS moms to gather for third annual Mothers’ Workshop at the HPS Network Conference
Eat for the Cure at Mama Gina’s in Valley Stream, NY
26th Annual HPS Network Conference to be held for families affected by HPS