Newsroom

EveryLife Foundation Establishes RAREis Scholarship Fund

The EveryLife Foundation is accepting applications for their new undergraduate/graduate scholarship program called RAREis. To qualify, students must be at least 17 years old and enrolled in a two-year, four-year or graduate level college program. Students can be...

Calling All Members! Be Part Of The Conference!!

By now you've heard that the Annual HPS Conference will be virtual. We are all very excited at this new opportunity for our membership who may not normally be able to attend our physical conference in Long Island to attend our Miles Apart But Close at Heart...

HPS members Casey Greer & Cassandra Mendez Ocasio have a Podcast!

Did you know that HPS members Casey Greer and Cassandra Mendez Ocasio have a podcast? The girls tackle what life is like living with a disability, and doing it with style. Some of the topics they have covered is White Can Safety, Dancing With a Visual Impairment, and...

HPS is a continued Platinum Member of NORD for 2021!

The HPS Network is proud to announce that we have continued our certification as a platinum member of NORD. NORD maintains high ethical standards for patient advocacy groups in order to make sure that we are doing the very best for the populations we serve. Being a...

NIH Symptom Scale Study

WE NEED YOUR HELP! Our mission at the Network is to find a cure for HPS. This is the driving force behind all that we do. A cure is not possible without research and for that we need you!   We are reaching out to see if you would be interested in taking part in...

Giving Tuesday

Giving Tuesday Zoom talk.  Please join us and view our latest Zoom talk in Youtube for more information. Click here to see a Youtube video of the Zoom talk.

Giving Tuesday 2020

Giving Tuesday 2020 is fast approaching! The HPS Network will be participating in Giving Tuesday this December 1, 2020. We understand these are challenging times, but the work of finding a cure does not stop! This year, we have a new software to make fundraising...