Newsroom - Articles

February 28 is Rare Disease Day!

The HPS Network celebrated Rare Disease Day 2021 by hosting a rare disease trivia on Gatherly. Thanks to our graduate student interns who helped curate the facts used for the event! Our membership was asked to spread awareness by sharing their stories on social media....

NIH Symptom Scale Study

  Our mission at the Network is to find a cure for HPS. This is the driving force behind all that we do. A cure is not possible without research and for that we need you! WE NEED YOUR HELP! Our mission at the Network is to find a cure for HPS. This is the driving...