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WHAT

The AID is a powerful opportunity for individuals with Albinism/HPS/CHS and their family members to contribute directly to research that will enhance our understanding of Albinism/HPS/CHS.

 

HOW

The AID is more than just a data collection system. It’s an interactive participant-driven resource that can empower the Albinism/HPS/CHS community.   Eligible participants include anyone around the world who has been diagnosed with Albinism/HPS/CHS. We hope the data collected leads to the development of new diagnostic and treatment options.

 

WHERE

Help make a difference in the Albinism/HPS/CHS community! Sign up today for the Albinism International Databank (AID) at www.aid.iamrare.org.

 

FAQ for AID

Spanish FAQ for AID