Conferences

Families affected by Hermansky-Pudlak Syndrome gather each year for the HPS Network conference. The HPS Network Conference is a place for families, physicians and researchers with an interest in Hermansky-Pudlak Syndrome (HPS) from around the world to gather for fellowship, education and fun.

New York on Friday, April 1st – Sunday, April 3rd, 2022 at the Long Island Marriott Hotel, Uniondale

Puerto Rico on Saturday, April 30th, 2022 at the Courtyard Marriott Hotel, Isla Verde Beach Resort, San Juan.

To register for the conferences, please complete the online registration form. (link will be coming shortly)

If you are in need of financial assistance, please complete a scholarship form. (link will be coming shortly)

 

HPS Conferences include:

  • Opportunities to meet and network with other families affected by HPS.
  • Educational sessions for everyone from the newly diagnosed, to seasoned veterans. Topics include: an overview for those newly diagnosed, women’s health issues, coping with the GI complications of HPS and information about lung transplantation, among others.
  • Updates on the most current HPS research
  • Opportunities to meet the doctors and researchers working to find better treatments, and someday, the cure.
  • Sessions designed to be a chance for attendees to have fun with new and old friends.
  • Sessions to learn how your family can participate and be a part of the solution.
  • Opportunities to participate in HPS research.
  • A workshop for the moms of kids with HPS.
  • Kids Camp – supervised fun activities for all.
Watch the following video and hear from those who have previously attended our conferences: