MEMBER EVENTS
Monthly Virtual Events
Mark your calendars to join us monthly for our virtual events! Details can be found on our virtual events page. Links to all events are included in our member emails. If you aren’t receiving them or want to become a member, please email us at info@hpsnetwork.org
2023 ATS Patients & Experts Forum
The American Thoracic Society is holding it's annual conference in Washington DC this year. ...
2023 Mother’s Workshop
Mothers!! Join us for our annual Mothers' Workshop with Sheila Adamo, LCSW, CADC This workshop...
Monthly Virtual Events
Mark your calendars to join us monthly for our virtual events! The information on all upcoming...
2022 Mother’s Workshop
Mothers!! Join us for our annual Mothers' Workshop with Sheila Adamo, LCSW, CADC Sunday, April...
Join Us on June 10, 2022
Mark your calendars to join us and make HPS history advocating for future treatments. The HPS...
Giving Tuesday, November 30, 2021
An event NOT to be missed! Whether it's doing an act of kindness, speaking out for a cause that...
Virtual Christmas Concert, December 4, 2021 at 7:30pm ET
We Saved the Best for Last and You're Invited! The 20th Anniversary HPS Benefit Christmas Concert...
Halloween Bash on Zoom, October 27, 2021 at 8pm ET
Please join us in costume on Zoom for a Halloween Bash! Wednesday, October 27th at 8pm ET Members,...
HPS Network Participating in the Million Dollar Bike Race
The Penn Medicine Orphan Disease Center (ODC) will host the 8th Annual Million Dollar Bike Ride on...
International Albinism Awareness Day is Sunday, June 13, 2021
International Albinism Awareness Day (IAAD) is on Sunday, June 13, 2021. This year’s theme and...
HPS Awareness Day April 6, 2021
Tuesday, April 6th is HPS Awareness Day! Starting in 2019, the HPS Network designated April 6th as...
February 28 is Rare Disease Day!
The HPS Network celebrated Rare Disease Day 2021 by hosting a rare disease trivia on Gatherly....
New Years Eve 2020
Join Donna on Wednesday, December 30, 2020 at 8 pm. on Gatherly.Click here for more information!...
Christmas Concert December 12, 2020
Annual HPS Christmas Concert Jingles and Jazz 2020 was held on December 12, 2020This year, our...
Spooktacular Party October 30, 2020
Spooktacular Party was on October 30, 2020. Everyone had a great time! Thanks for attending.