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HPS Included in 2025 DoD Research Program

HPS Included in 2025 DoD Research Program   Oyster Bay, NY – In August, the Senate Appropriations Committee unanimously approved the Defense Appropriations bill in a 28-0 vote. For the first time, the committee report accompanying this bill includes...

Supplemental Oxygen Access Reform (SOAR) Act

HPS Network supports SOAR Act (S. 3821, H.R. 7829)    The HPS Network joins with a coalition of other patient advocacy groups and interested professionals to support the Supplemental Oxygen Access Reform Act or SOAR Act (S. 3821, H.R. 7821). The legislation would...

Join Our Team of Advocates

Did you know the HPS Network advocates for federal research funding?  Rick Bowman has been championing this cause for us and he needs your help. If you are interested and able to meet with your members of Congress either virtually or in person, please send us your...

2023 Lung Disease Week at the ATS

The American Thoracic Society (ATS) Public Advisory Roundtable (PAR) is hosting its eleventh annual “Lung Disease Week at the ATS” series this year.  This is a society-wide initiative that recognizes the many lung and airway disorders for which ATS PAR member...

2024 Mother’s Workshop

Mothers!!  Join us for our annual Mothers’ Workshop with Sheila Adamo, LCSW, CADC This year we are offering two workshops!  These workshops provide an opportunity for mothers of children with HPS to connect, learn and empower one another.  Participants will have...