Did you know the HPS Network advocates for federal research funding? Rick Bowman has been championing this cause for us and he needs your help. We’re gathering a team of advocates to help secure federal resources for Hermansky-Pudlak Syndrome research. The HPS...
The American Thoracic Society (ATS) Public Advisory Roundtable (PAR) is hosting its eleventh annual “Lung Disease Week at the ATS” series this year. This is a society-wide initiative that recognizes the many lung and airway disorders for which ATS PAR member...
Mothers!! Join us for our annual Mothers’ Workshop with Sheila Adamo, LCSW, CADC This year we are offering two workshops! These workshops provide an opportunity for mothers of children with HPS to connect, learn and empower one another. Participants will have...
The American Thoracic Society is holding it’s annual conference in Washington DC this year. On Saturday, May 20th is a FREE Patient/Family education day event. This year’s talks will focus on providing pulmonary healthcare access for all. The details...
On Thursday, November 10th, the American Thoracic Society (ATS) presented as part of the “Lung Disease Week at the ATS” initiative – a program designed to facilitate information exchange between patients and experts on matters relating to lung and airway disorders....
