New York State Rare Disease Advisory Council

Ashley Appell, the original member of the HPS Network, was nominated to serve on the recently created New York State Rare Disease Advisory Council by James McDonald, M.D., M.P.H., the New York Commissioner of Health.  Ashley Appell worked tirelessly to advocate for the creation of the advisory council.  She, in partnership with other advocates, lobbied the New York legislature for several years asking for the creation of the council.  Ashley Appell is the daughter of Donna Appell, the Founder and Executive Director of the HPS Network.