Pharma listens to the HPS story

Sep 21, 2022

Donna Appell, Executive Director and Founder of the HPS Network, delivered a presentation about Hermansky-Pudlak Syndrome and the HPS Network to the 2022 Corporate Meeting of the American Thoracic Society (ATS). The meeting is attended by representatives of the pharmaceutical industry. She spoke about how the willingness of the ATS to work with patient organizations moved HPS research forward. “Looking back over the 27-year history of the HPS Network, we were fortunate to have a relationship with ATS. The research we’ve been able to fund through partnering with the ATS has been important to move research on our very rare disease,” said Donna Appell.