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Events - Articles

2023 Mother’s Workshop

Mothers!!  Join us for our annual Mothers' Workshop with Sheila Adamo, LCSW, CADC This workshop provides an opportunity for mothers of children with HPS to connect, learn and empower one another.  Participants will have an opportunity to process the many emotions that...

Monthly Virtual Events

Mark your calendars to join us monthly for our virtual events! The information on all upcoming meetings can be found on our virtual events page.  Links to all events are included in our member emails.  If you aren't receiving them or want to become a member, please...

2022 Mother’s Workshop

Mothers!!  Join us for our annual Mothers' Workshop with Sheila Adamo, LCSW, CADC Sunday, April 3rd, from 5pm to 8pm ET Registration is required for this event: LINK TO REGISTRATION FORM

Join Us on June 10, 2022

Mark your calendars to join us and make HPS history advocating for future treatments. The HPS Network will host an Externally-Led Patient Focused Drug Development meeting on June 10, 2022. This meeting will be open to the public, with speakers and attendees attending...

Giving Tuesday, November 30, 2021

An event NOT to be missed!  Whether it's doing an act of kindness, speaking out for a cause that matters to you, or donating to a favorite nonprofit, every act of generosity counts and each means more when we give together...this is the spirit of Giving Tuesday.  Stay...

Virtual Christmas Concert, December 4, 2021 at 7:30pm ET

We Saved the Best for Last and You're Invited! The 20th Anniversary HPS Benefit Christmas Concert will take place virtually again this year.  Minimum donation for the concert link is $50.  Send in your donation to the network with a note that you would like to attend...

HPS Awareness Day April 6, 2021

Tuesday, April 6th is HPS Awareness Day! Starting in 2019, the HPS Network designated April 6th as HPS Awareness Day.  Why April 6th? That is the HPS Network’s birthday, as we were incorporated as a 501c3 on. April 6, 1995. What is HPS Awareness Day?  It is our one...