HPS Header Logo
DONATE NOW
HPS Header Logo
DONATE NOW

Join Our Team of Advocates

Nov 7, 2023

Did you know the HPS Network advocates for federal research funding?  Rick Bowman has been championing this cause for us and he needs your help.

We’re gathering a team of advocates to help secure federal resources for Hermansky-Pudlak Syndrome research.  The HPS Network will help you advocate and prepare each of you to meet with your members of Congress over the next 6-9 months.  The first step is gathering the contact information for our team and building our #StrengthInNumbers!

If you are interested and able to meet with your members of Congress either virtually or in person, please send us your Name, phone#, email address and physical address to info@hpsnetwork.org so that we can add you to the team and Rick can get you connected with the appropriate member of Congress.