June 10, 2022 More than 250 individuals participated in our long awaited Day in the Life Event. If you were a part of the meeting, THANK YOU!
If you weren’t able to participate that day, you can still watch the recorded meeting as well as submit your comments. We will continue to collect your comments through July 10th.
We will be hard at work pulling together all we heard into a Voice of the Patient Report which we will make available to the FDA and all our members later this year.
You can watch the recording of the event in English or Spanish on our EL-PFDD page.