This meeting was held June 10, 2022 and brought together representatives of the FDA, pharma and other interested parties to listen to the needs of the HPS community. The report that will come from this meeting will be used by the FDA and pharma to help analyze the risks vs benefits of future therapies. It was a chance for the HPS community to truly be heard by industry and government.
You can watch the recording of the event in English or Spanish on our EL-PFDD page.
The full report will be posted here as soon as it is complete (early 2023).