A number of researchers working on the gastrointestinal issues of Hermansky-Pudlak Syndrome will join us at this year’s HPS Conference to discuss current and planned research projects. If approval is secured in time, some samples may be collected at the conference. If not, HPSers affected by the gastrointestinal complications of HPS will be able to learn how they might participate in upcoming research projects. They will also have a chance to network with other patients affected by the GI complications of HPS as well as speak with physicians that have experience treating the GI disease of Hermansky-Pudlak Syndrome. If you attend conference and have the GI complications of HPS, we request that you attend the Saturday session, “GI Wish I Felt Better” to be sure you are able to connect with these valuable resources.

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