HPS Network adds 48 new people with Hermansky-Pudlak Syndrome to registry

The HPS Network, a non-profit patient organization serving families affected by Hermansky-Pudlak Syndrome (HPS) added 48 new people with HPS to its registry between March 2017 and March 2018 as part of its Hundred People Search (H.P.S.) campaign. The HPS Network often assists families and their physicians access diagnostic testing, and provides education and other support services after diagnosis. “We never want anyone to test positive for HPS,” says Heather Kirkwood, Director of...