About the Network

Our Mission

The Hermansky-Pudlak Syndrome Network Inc. is a volunteer self help, not for profit support group for people and families dealing with Hermansky-Pudlak Syndrome (HPS) and related disorders such as Chediak Higashi Syndrome.

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Member Stories

Real life stories from people living with Hermansky-Pudlak Syndrome.

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Member Photos

Pictures of people with Hermansky-Pudlak Syndrome.

Our Member Photos

HPS Around the Web

Check out videos and commentary by people with HPS.

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Contact Us

Phone: 1 (800) 789-9HPS
Email: info@hpsnetwork.org


This Website is intended to provide information. It is not intended to, nor does it, constitute medical or other advice. Readers are warned not to take any action with regard or otherwise, based on the information on this website without first consulting a physician.