Heather Kirkwood was diagnosed with HPS at 29, and pulmonary fibrosis at 33. She is a freelance journalist, writer and artist. She also produces the HPS Network newsletters, manages the Network’s online content and social media efforts,and performs a myriad of other tasks. Her story is one of those featured in the documentary RARE. Currently, Heather is on the lung transplant list and hopes to get a new lung soon. Heather worked more than a decade as a Senior Editor for EX PO Magazine, a magazine for trade show planners. She has also reported for publications such as the Kansas City Business Journal, the South China Morning Post as well as trade
publications such as Firstline, a magazine for vet offices and Golf Course Management. Heather graduated with highest honors from the University of Kansas School of Journalism.