COVID in Communities

This survey was used to determine whether a rare condition predisposes a person to more or less severe COVID symptoms. Click to view as PDF. Questions regarding the survey can be directed to...

HPS Network partners with NIH to create HPS Fellowship

The HPS Network has partnered with the lab of Dr. William Gahl at the National Institutes of Health Genetic Research Institute to create a post/doc position devoted to gene therapy research of HPS. The donation to cover the salary for two years has been given by the...

HPS Network and Broad Institute Form Genetic Testing Partnership

The HPS Network and Boston-based Broad Institute have formed a partnership to make genetic testing more available to families impacted by Hermansky-Pudlak Syndrome. The Institute is willing to provide free gene type testing to families in need, or who have not yet...