Albismo Chile, the organization for families affected by albinism in Chile, invited Carmen Camacho to give a presentation about Hermansky-Pudlak Syndrome (HPS) to its members as part of International Albinism Awareness Day. “I was honored to be asked to give this presentation. They asked very good questions. I know that we have some allies in Chile,” said Carmen Camacho, who is also a board member of the HPS Network.
“It is exciting that more and more international albinism groups are asking the Network to give presentations about HPS. With technology, we can present anywhere there is a high-speed internet connection. It is so important that people in the albinism community are aware of HPS because as we get better treatments, we don’t want to leave anyone, anywhere, behind,” said Heather Kirkwood, VP and Director of Communications for the HPS Network.
If you would like to see Carmen’s interview, go to: https://www.youtube.com/watch?v=Zwyo5GOLsY8