April 6th to be Hermansky-Pudlak Syndrome Awareness Day!

Mar 27, 2019

This year the Hermansky-Pudlak Syndrome community is celebrating the first-ever Hermansky-Pudlak Syndrome Awareness Day! The day is devoted to generating awareness of the syndrome, as well as awareness of the problems we must overcome to find better treatments and a cure.

Keep checking the HPS Network social media for the launch of our awareness ribbon. We hope you will also support our online social media campaign.

The HPS Network’s facebook page is: https://www.facebook.com/hpsnetwork/

You can find us on Twitter at: @HPSNetwork

You can find us on Instagram at: HPS Network