Donna Appell, Founder and Executive Director of the HPS Network, was profiled by Global Genes for the month of June as a Rare Leader. The profile summarizes how Appell became interested in Hermansky-Pudlak Syndrome and how she started the HPS Network. The article also outlines the Network’s strategy and plans for going forward. It is a quick read, and a great way to gain a little insight into the Network if you are new or don’t regularly engage with us. Read the profile here: https://globalgenes.org/2020/06/04/308924/