The HPS Network donated $1,000 to support the efforts of Dr. Enid Rivera and Dr. Wilfredo De Jesus Rojas to provide a pediatric clinic for children with Hermansky-Pudlak Syndrome in Puerto Rico. The funds went to purchase a spirometer, mouth pieces and nose clips for the clinic. Dr. Rojas is interested in exploring the pulmonary function of children with HPS to see if there is anything we can learn to identify lung disease early.
The clinic is held the third Thursday of each month at the University of Puerto Rico Medical Sciences Campus, Pediatric Hospital in San Juan. The equipment will also be used at a satellite clinic at Mayaguez Medical Center every four months.