HPS Network presents to Albinos Paraguay

Jun 15, 2020

As part of International Albinism Day, Albinos Paraguay invited the HPS Network to give a presentation about Hermansky-Pudlak Syndrome. As flying to Paraguay isn’t possible, Carmen Camacho and Nancy Lee, both members of the HPS Network board of directors, gave an online presentation. Carmen explained what HPS is and Nancy spoke about her experiences, including her double lung transplant. Albinos Paraguay recorded the presentation and shared it with the HPS Network. The presentation is in Spanish. If you’d like to see it, go to: https://www.youtube.com/watch?v=zQ6AtR7zrBg&feature=youtu.be&fbclid=IwAR0S2qqN-4auFpaoYOrrWMin_DqYMl3Ct0Pt9tR1BFhcWSVE8N4q8IxrGUE