A group from the HPS Network will be attending Meet the Experts, a patient program held at the American Thoracic Society by the Public Advisory Roundtable. This year’s theme will be “The Role of Patients in Advancing Treatments and Cures.” The seminar will be held Saturday, May 20, 2017 from 10:00 am to 2:00 pm at the Renaissance Washington DC Hotel, 999 9th St. NW in Washington DC. Parking validation, lunch and complimentary oxygen will be provided.
Sessions will be about various aspects of participating in research. After lunch, the audience will break up into different groups to discuss their particular disease state. The HPS Network will not have a physician expert this year, but will meet with anyone interested in Hermansky-Pudlak Syndrome and discuss the research needs of our community.
To RSVP contact the HPS Network office at (516) 922-4022 or e-mail: info:hpsnetwork.org.