The Puerto Rican Senate will hold a hearing to consider Bill 1127 that would make changes in coverage for those with Hermansky-Pudlak Syndrome (HPS) and other types of albinism that are insured by Reforma, the island’s public health care coverage.
Advocates for HPS on the island are asking supporters to attend the hearing on Feb. 12 at 9:00 am at the Annex of the Capitol. Hilda Cardona and Dr. Enid Rivera have advocated for this legislation that would, among other things:
- Extend catastrophic coverage for HPS to affected adults,
- Do away with the need for referrals before those affected by HPS can see relevant specialists such as hematologists or pulmonologists,
- Make it unnecessary to seek exemption from laws regarding car window tinting every single year since the need for those with HPS does not change.
For more information on how to participate in the event on Feb. 12th, call Hilda Cardona at: (301) 974-7108.