Mother’s Workshop planned for this year’s HPS Conference

Mothers with children that have Hermansky-Pudlak Syndrome will be able to network with each other and learn how to handle the common issues that come up raising a child with HPS at the 24th Annual HPS Network Conference, to be held March 10 – 12, at the Long Island...

Early bird hotel and registration extended

The early bird hotel and registration prices for the HPS Network Conference are extended until Valentine’s Day, Feb. 14. This year’s conference theme is “Tune In The Network.” The HPS Conference is a chance to meet other families affected by the HPS type of albinism,...

Dr. Mueller to present about gene therapy at 24th Annual HPS Conference

Dr. Christian Mueller, Associate Professor in the Department of Pediatrics and in the Horae Gene Therapy Center at the University of Massachusetts Medical School will give a presentation on the basics of gene therapy at the 24th Annual HPS Network Conference, March 12...