Supporters escape to fund the cure

Supporters of the HPS Network took on the challenge of an escape room at The Great Escape Zone in Bensalem, PA to benefit the HPS Network. The event was organized by Yari Alvarado, the mother of a child with HPS. She was able to get The Escape Zone to donate a percentage of the cost of Escape Room packages bought by customers who said they were there to support the HPS Network. Packages had to be purchased by a certain date, but could be used...

Dr. Samuel Seward to attend the 26th Annual HPS Network Conference

Dr. Samuel Seward, a board member and scientific adviser to the HPS Network, will attend the 26th Annual HPS Network Conference, to be held March 8 – 10, 2019 at the Long Island Marriott in Uniondale, NY. On Saturday, he will participate in the Meeting of the Minds, an invitation-only scientific meeting for doctors and researchers working on Hermansky-Pudlak Syndrome (HPS). On Sunday, he will present information about the standard of care for people with HPS. Dr. Seward received his M.D. from...

Kleins take part in Boscov’s Friends Helping Friends days

Amber Klein and her dad Jeff Klein took part in a charity event day at their local Boscov’s department store. They were able to sell $5 discount shopping passes for the special charity event day. Buyers were able to get 20 percent off of almost everything in the store, as well as be entered to win various prizes. The HPS Network received 100 percent of the ticket price. “Year-round Boscov’s is actively and intimately involved with the non-profit organizations in each of our local communities....