Journal article: Genetic screening reveals hotspot variants and prevalence rates of Hermansky-Pudlak syndrome in the Chinese population Link: https://www.sciencedirect.com/science/article/abs/pii/S0009898124020655 Summary: These researchers used newborn screening to...
HPS Included in 2025 DoD Research Program Oyster Bay, NY – In August, the Senate Appropriations Committee unanimously approved the Defense Appropriations bill in a 28-0 vote. For the first time, the committee report accompanying this bill includes...
HPS Network supports SOAR Act (S. 3821, H.R. 7829) The HPS Network joins with a coalition of other patient advocacy groups and interested professionals to support the Supplemental Oxygen Access Reform Act or SOAR Act (S. 3821, H.R. 7821). The legislation would...
Did you know the HPS Network advocates for federal research funding? Rick Bowman has been championing this cause for us and he needs your help. If you are interested and able to meet with your members of Congress either virtually or in person, please send us your...
The American Thoracic Society (ATS) Public Advisory Roundtable (PAR) is hosting its eleventh annual “Lung Disease Week at the ATS” series this year. This is a society-wide initiative that recognizes the many lung and airway disorders for which ATS PAR member...
