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Giving Tuesday Now

Apr 28, 2020

HPS Network Responds to Urgent COVID19 Need with a gratitude campaign of online giving, Joining #GivingTuesdayNow in Global Day of Giving and Unity.

Go Fund Me Donation Page for Giving Tuesday Now

We hope that this message finds you all safe during these trying times.  We realize that while we may all be in the same storm, we may be in different boats.  We want to ensure our supporters that our commitment to our mission of finding a cure for Hermansky-Pudlak Syndrome has not waned, and that important work continues, even during a pandemic.

Giving will be done in an online fundraiser as well as direct donations to our website, HPS Network. A 7 day countdown will begin, culminating with the day of giving on Tuesday May 5, 2020.   The HPS Network is responding to meet the needs of our population, who are particularly susceptible to the effects of COVID-19, as they are by any respiratory illness. The novel coronavirus presents a particular challenge because so little is known about its long term effects on the lungs. We hope to foster goodwill by expressing our gratitude, even in these challenging times and hope that if you can support our cause you will.  We are all in this together!

#GivingTuesdayNow is a global day of giving and unity, set to take place on May 5, 2020 as an emergency response to the unprecedented need caused by COVID-19. The day is designed to drive an influx of generosity, citizen engagement, business and philanthropy activation, and support for communities and nonprofits around the world.

At a time when we are all experiencing the pandemic, generosity is what brings people of all races, faiths, and political views together across the globe. Generosity gives everyone power to make a positive change in the lives of others and is a fundamental value anyone can act on. It’s a day for everyone around the world to stand together and give back in all ways, no matter who or where we are.

Like many non-profits during this time, we have had to cancel multiple in person fundraisers due to the necessity to keep our population safe.  We also had to cancel our annual conference this past March.  Yet, as always, the work continues.  We continue to work virtually with all members of our staff and volunteers.  We continue to prepare to be research ready.  We have also hosted virtual meet ups with our members to maintain our sense of community and to keep everyone up to do date on the workings of the HPS Network.

As our founder and Executive Director Donna Appell loves to quote, “It’s not about waiting for the storm to pass, it’s about learning to dance in the rain.”

Please consider making an emergency donation to the HPS Network, so that we may continue our mission and continue to support our members.  We may be rare, but we are mighty!  A cure for us means a possible cure for many of the ailments that afflict those in the general population.  We thank you from the bottom of our lungs!

Click Here to Donate!