Becky Nieves and Sandra Ocasio, both mothers of someone with HPS, are organizing a fundraising project and they’d like your child’s help. They are creating a 15-page book, written and illustrated by kids with HPS or their siblings, about being rare. The books will then be sold as a fundraiser. They already have three submissions, but would love to have more! If you and your child 12 or under would like to participate here is what you need to do:

  1. Ask your child to draw two or three pages portraying something rare about themselves. It could be HPS related, but it doesn’t have to be. It might be something they are good at doing, or a unique hobby. It would be great if the kids used pencils or crayons to create their drawings.
  2. Each drawing should have a text box, typed, that answers the question, “I am rare because…”
  3. Submit the drawings as PDF files to Becky Nieves at

If you are not able to add the typed text box or scan your child’s artwork to make a PDF, you can mail it to: Becky Nieves, 9 Elbow Lane, Sicklerville NJ, 08081.

Please have submissions in by Aug. 1.


Contact Us

Phone: 1 (800) 789-9HPS


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